Saturday 9 May 2020

Thank you for being there

A journey that started on 10th May 1995 has reached 25 years today 

from Junior Accounts Assistant 
To Social Worker (experiential expert)
From Leassure and Sports Unit Coordinator 
To Advocacy Unit Coordinator
From Advocacy Unit Coordinator
To Assistant Coordinator of another form of the same and 
To the Coordinator of DLU South 
From State Coordinator of NDN
To Regional Coordinator of NDN
To Director DRI, HRLN
From Trainee 
To trainer of Trainers 
From Founder General Secretary of Ektha 
To Executive Director of Ektha 
To Founder Trustee of Equals Center for Promotion of Social Justice 
From General Body Member of Vidya Sagar
To South Asia Representative at the board of APDPO, United  
To Representative if the Disability Sector in the Core Group of a National Cross Sectoral Confluence, Vikalp Sangam 
From member of Local Level Committee under the National Trust 
To member of the Rights of Persons with Disabilities Act Drafting Committee 
From advocating for Disability Rights 
To Trainer in Para Sports, Boccia
To organiser of State and National Tournament

It has been tremendous journey of of 25 years 
It would never have been possible alone

Thank you mentors 
Poonam aka, Mrs Poonam Natarajan
Usha aka, Mrs Usha Ramakrishnan 
Rajul aka, Mrs Rajul Padmanaban
Dipti aka, Miss Dipti Batia 
Mr Chithambaranathan
Mr Javed Abidi 
Mr Lobithas 

Thank you my dream team at DLU South, Vidya Sagar 
Mr Dhanasekar 
Miss Smitha Sadhashivan 
Mrs Meenakshi B.
Mrs Shanthi Srinivasn 
Mr Devi Chakravarthi 
Mr Guru Prasad
Mrs Deepa Kalaivanan 
Mr Amarthyo
Mr Vincent 
Miss Jennifer Fatogun 

Thank you long time colleagues in South India 
Mr Deepak Nathan 
Mr Srinivaslu 
Mr Paul Ramanatan 
Mr Simmachandran 

Thank you 
The Chennai DRA Team I am not taking names here as the list endless

Thank you Ektha team 
Mr Dhanasekar 
Mr Dheepakh PS 
Mr Prabakaran A
Mrs Lakshmi Bala 
Mr  Sathish Kumar
Mr Sunderaman Kannan 
Mr Amarnath Prabakaran 
Mr Balu Mahendran 
Miss Kalvina Rajendran 
Mr Ajay Balakrishnan 

Thank you Equals team
Miss Amba Salelkar 
Miss Sudha Ramamurthy 
Mrs meenakshi B 
Miss Algammai

Thank you sponsors volunteers and other supporters 

Without even one of you the journey would not have been as complete and memorable as it has been 

Wednesday 1 April 2020

Impact of corona and lock down on persons with disabilities 4 Radha Ramesh

As we all cope with lockdowns and social distancing ,we ,the rehabilitation professionals at Vidya Sagar are concerned about  the persons with disabilities and their families.

Social distancing will be a huge difficulty in practice for people with disabilities and their caregivers .


       How do we monitor and ensure hygiene and safety of persons/children with disabilities who have high restrictions in participation .They have to depend on caregiver for all their needs.The caregiver could be their own parent or sibling or a family member or a paid attendant. 

Lack of awareness among parents and primary care givers is a major concern. 

This is a serious concern as it would affect the health of the person with disability and would have a long term impact .

This type of long isolation holidays may lead to other complications such as deterioration of physical condition due to lack of services like physio therapy, occupational therapy etc.

When students with disabilities return back to school they would have to put in double the effort -coping with physical therapy and academics .

The team from Vidya Sagar is constantly in touch with parents sharing concerns and extending emotional support in this stressful hour .

We are sharing strategies and sending activities to the parents to be done with or by the students. 

We also request them to use this time for family bonding, focusing on choice making and decision making opportunities for the person /child with disability and make them part of the family and participate in executing the daily activities.

Food for our beneficiaries staying in remote villages is another concern. Getting their monthly maintenance allowances. The government advance of 1000 for the next 3 months has not yet been received by many people. Most for the village people solely depending on this maintenance allowance for their daily expenditure

Radha Ramesh ,
Parent of two adults with disabilities who have high restrictions in participation 
&
Director ,
Vidya Sagar.

impact of corona and lock down on persons with disabilities 3 Rajkumar M

As a person with Beckers Muscular Dystrophy, the current duty of Corona virus is making me to think as below.

Being a person with disability i should be careful by not venturing out from home to save me otherwise it will be a very worst thing for me to get quarantined at hospital as managing myself will be difficult. 

Socialising was a best stress reliever for a person with disability but being holed up at home for 13 days & working from home brings little stress.

Another fear is that if my family member or care taker gets affected, how can I cope up with my life.

The best reliever of stress and making myself relaxed is the presence of social media.

Rajkumar M
Person with disability based in Chennai 
&
Plant Lead Engineer working in a reputed MNC

Tuesday 31 March 2020

Impact of corona and lock down on persons with disabilities 2 Dhanasekar A

I Don't remember of this outbreak initially, today a pandemic COVID 19. As a person with disability with my capabilities I don't see it a major concern. 

What really is the concern here? With the imposition of Section 144 pan India my worry is how would Parsons with Disabilities get their essential services on a daily basis. Here I am talking  about persons with disabilities who have high restrictions in participation. How does a person get the services of an escort for buying essentials? Will he be allowed to go out? A million dollar question. 

As we have always been reiterating there a need for including the issues of persons with disabilities during planning and implementation of disater management. 

The positive factor here I see is spending of quality time with family members and without shadow of doubt safety of one and all.

Dhanasekar A
Disability Rights Activist 

Monday 30 March 2020

impact corona and lock down on persons with disabilities 1 Dheepakh PS

When the Central Government announced a lockdown, for 21 days from last night (24.3.20- from midnight), it was 8 pm, so how do we go to the ATM, where the machines are not accessible and withdraw money in just under 4 hours? Even if it is one of the services which is open, without security guards around, it is not safe for us. An accessible and mobile ATM would solve this issue. 

What about care givers for people with severe disabilities? How do they find a way out? These are questions which have to be looked into,  before taking such decisions. 

The effect of the COVID-19 Pandemic which has thrown all our work routines  into a dizzy, suspended sporting events across the globe, has taught me an important lesson. Never to procrastinate things and leave it until they are too late. 

As a Person with Disability,  who commutes a lot, this curfew is indeed a difficult thing to follow, but have to do it for the benefit of all of us. 

My biggest concern is about essentials, albeit I have stocked enough for the time being, there's a sense of what-if popping up every now and then. 

Mobility as a person with disability is certainly taken a beating and though am fortunate to have shops nearby but am thinking of those for whom there are environmental barriers and attitudinal barriers imposed by the society when trying to access those. 

While people are running helter skelter to stock up, there is every possibility that the Person with disability might be left out in the crowd?

Am not questioning the government s decision to lockdown but asking them to keep PwDs in mind too, when they come across such circumstances.

Dheepakh PS 
Person with Disability 
&
Journalist working with a prominent Daily